Welcome to Epilepsy Awareness Purple Warrior
Welcome to Epilepsy Awareness Purple Warrior
Who are we
Our Team
Our team is a big part of why we are still going, without them we would not be where we are today, from the graphics to the videos every year, no one could do this alone. I am so grateful for them along with all the people that visit our Facebook page and the support of our local communities, businesses, and organizations.
The Founder
Seth J Willey is the founder of Epilepsy Awareness Purple Warrior.
Born on Aug 25, 1988, to a loving mother and a fighter from the very beginning. At the age of 14 Seth was diagnosed with childhood epilepsy. After Seth was married to his wonderful wife he was living a semi-normal life until at age 23 Seth started having tonic conic seizures. By 2015 Seth had the family he always wanted 2 children and a wife while still living with epilepsy. Seth also has Physiological non-epileptic seizure dyslexia Charcot Marie tooth type 1 A scoliosis but still works and raises his family. Despite the challenges of epilepsy, Seth has shown you can live a normal life, so keep going and never give up!
Our History
In 2014 Seth Willey the founder of Epilepsy Awareness Purple Warrior wanted to educate others on epilepsy to help save lives around the world. His goal was to reach out to as many people as possible. Motivated by the hope for the stigma and misunderstanding of epilepsy around the world to be stopped. Seth launched on Facebook Epilepsy Awareness Purple Warrior, a page dedicated to promoting awareness and education about epilepsy. Today, this online community has grown to over 5000 warriors!
In 2022 Seth Willey step down from his position of founder to seek othor journeys after 8 years handing the page down to the now CEO Sarah Trask.
CEO
Our CEO Sarah has been with us since the very beginning. Her role is to help manage the Facebook Page from our posts to the yearly November epilepsy video. She provides valuable insight on how to improve the page and expand awareness. She has come up with some key ideas over time that have spread epilepsy awareness around the globe. As of 2022 she's owner and operator of epilepsy awareness Purple Warrior after the founder stepped down.
Sarah was diagnosed with pediatric brain cancer at a young age and was able to overcome it. However, one of the lasting effects of the cancer was being diagnosed with epilepsy. Each day is a challenge for Sarah as she continues to fight, she even had a VNS surgery to help with the seizures. She has a loving family that supports her with her battle everyday.
Our Mission
Our mission here at Epilepsy Awareness Purple Warrior is to spread awareness and educate in able to save lives. How do we do this you may ask? We get in touch with people around the world - local citizens, governments, organizations, and business. We teach them how to save lives and provide them with resources. We are here to help people in any way we can, reaching out to the community with events and lectures.
Each of us is a warrior, together we are warriors!
Resources
Purpleday
Epilepsy Foundation New England
Epilepsy Foundation New England
Founded in 2008 by then nine-year-old Cassidy Megan of Nova Scotia, Canada, Purple Day® is a grassroots effort dedicated to increasing awareness about epilepsy worldwide. On March 26, people from around the globe are asked to wear purple and spread the word about epilepsy. Motivated by her own struggles with epilepsy, Cassidy started Pur
Founded in 2008 by then nine-year-old Cassidy Megan of Nova Scotia, Canada, Purple Day® is a grassroots effort dedicated to increasing awareness about epilepsy worldwide. On March 26, people from around the globe are asked to wear purple and spread the word about epilepsy. Motivated by her own struggles with epilepsy, Cassidy started Purple Day® to get people talking about the condition in an effort to dispel myths and inform those with seizures that they are not alone. “My message to you for Purple Day is to be proud and be strong. Epilepsy is a part of you but it doesn’t define you. Everybody has a voice, continue to use yours to speak out and spread awareness for epilepsy. Don’t fear it, own it and tell your story. Together we are erasing the stigma of epilepsy.” In 2009, The Anita Kaufmann Foundation (AKF) and Epilepsy Association of Maritimes (EAM) joined forces to launch Purple Day® internationally. As global sponsors, both organizations are committed to partnering with individuals and organizations worldwide. The combined efforts of AKF and EAM have led to the involvement of many organizations, schools, businesses, politicians and celebrities around the world. Please join us in wearing purple on March 26 to support epilepsy awareness worldwide.
for more info vist:
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Epilepsy Foundation New England
Epilepsy Foundation New England
Epilepsy Foundation New England
Established in 1983, Epilepsy Foundation New England is a 501 c 3 nonprofit organization whose mission is to help people and families affected by epilepsy in New England. Epilepsy Foundation NE is an independent affiliate of Epilepsy Foundation of America whose mission is to lead the fight to overcome the challenges of living with epileps
Established in 1983, Epilepsy Foundation New England is a 501 c 3 nonprofit organization whose mission is to help people and families affected by epilepsy in New England. Epilepsy Foundation NE is an independent affiliate of Epilepsy Foundation of America whose mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. We serve the approximately 104,000 people in Maine, Massachusetts, New Hampshire, and Rhode Island affected by epilepsy and the people who care for them. Our services are designed to provide Help for Today, Hope for Tomorrow. We provide Youth Services, including summer camps, year round programs for elementary and middle school (Kids Connect), and young adults (Young Leaders Network), as well as a scholarship program; Resource and Support Services including emergency financial aid, helpdesk, support groups, retreats, and our Remembrance Network for people who have lost someone to epilepsy; Community Education; Public Policy Advocacy; and Fundraising for Research. In March 2020, all our services became available by video conference and/or phone. Programs include multiple daily opportunities for children, youth, and adults to connect, regular webinars, conferences, parent education and support, and themed support groups, such as groups geared towards men. Our 2020 camp season will be virtual. Established in 2009, the EFNE Donation Center is an LLC of Epilepsy Foundation NE. Thanks to a partnership with Savers, the Donation Center collects clothing and household items that are resold through 14 regional thrift stores. Epilepsy Foundation NE is governed by a 20‐member volunteer Board of Directors. A 30‐member Professional Advisory Board provides Strategy, Advice, Outreach to Epilepsy Foundation NE and act as Ambassadors for our mission. Western MA, Eastern MA, ME, NH, and RI Councils provide leadership for the epilepsy community in their regions and ensure that Epilepsy Foundation NE is attuned to each area’s strengths and challenges. Councils contribute to networking and community‐building activities for the epilepsy community in their area; conduct outreach to help build a network of people with epilepsy and their loved ones in their area; select and help run programs and activities that engage and connect people with epilepsy and their loved ones to each other and to the Foundation; support fundraising activities such as our Walk for Epilepsy; act as ambassadors for Epilepsy Foundation NE; support advocacy work in the region/state; and work as individuals and as a Council to implement strategies that decrease the stigma of epilepsy.
for more info go to: